Please give people who are struggling daily a voice:
If this message reaches only one person and highlights how are Health care system in Ireland works, I have raised awareness.
The Government’s adopted Ireland’s ratification of the Convention on the Rights of Persons with Disabilities (UNCRPD), which allow’s people with disabilities to make complaints about service provision in Ireland to the UN.
I made a formal complaint under the current and only HSE’s Your Service Your Say Policy on the 24th August 2017. There were two issues I addressed in my complaint:
1. Lack of support from the HSE to help me find suitable accommodation
2. Lack of clarity from the HSE regarding the support package that will be provided to me upon a move to the community.
Under the policy the HSE should either investigate your complaint within 30 working days or issue you a progress report within the 30 working days with further progress reports to issue every 20 working days thereafter. Almost one year on since making the complaint no outcome has been given.
Basically if I found a suitable home in the morning, there is no provision of services available by the HSE in the west of Ireland to help support me to live independently in my own home (even though that is what I am doing now in a different setting). Therefore I must live in a congregated institution indefinitely.
So this means my rights are violated, while the HSE and other bodies are protected from complaints related to specific services for disabled people. Regardless of where I live, my human rights are eroded and considered by the State as being insignificant.